application for data and samples
Researchers wanting to submit an application for data and/or samples from the Lifelines biobank must follow the five steps explained below. The forms and documents required for each step are also described.
would you like to know more first?
Researchers wanting to get more information on the available data first can submit a request for information. Under data and samples you will find an overview of previously collected data in the Lifelines cohort. If you would like to know more about the cohort or the available data and samples before submitting your application, please submit a request for information.
Would you like to know how many men (aged 50-65) in our cohort have diabetes? Or for how many individuals the whole genome has been determined? Or would you like to know how many children (aged 4-12) there are in our cohort whose parents also participate in Lifelines? For these and other questions, you can submit a request for information.
If you would like to collect additional data or biological samples, please contact Lifelines to discuss the possibilities for an additional study
step 2: application review
Lifelines will review your application / study proposal. They will check whether the right data and samples were requested and whether your study fits the Healthy Ageing theme. They will contact you if they have any practical or other questions.
New applications are reviewed once a month. New applications can be submitted before the following deadlines:
- August 13, 2018
Lifelines will send you the results of their review. After approval of the application, the offer and Data/Material Transfer Agreement (DMTA) will be drafted.
step 4: release
The release of data and samples starts off when Lifelines has received the DMTA and the relevant offer and forms signed by both parties. Lifelines applies the following terms:
- Release of data 2 weeks after receipt of signed offer/DMTA
- Release of genetic data 4 weeks after receipt of signed offer/DMTA
- Release of samples in consultation
If you have applied for data, you will have access to this data via a secure virtual working environment called Workspace. The data applied for is issued in SPSS files. The data is pseudonymised to guarantee privacy. The most common statistical programs (SPSS, R, R studio and, on request STATA) have been installed in the Workspace.
If your application (also) concerned genotype data, you will have access to this data via a secure link to a High-Performance Computing (HPC) cluster from the Workspace. The cluster is equipped with the common programs for genotype data analysis. Read more about using the HPC cluster.
Lifelines offers the samples from its state-of-the-art Lifestore. The samples you requested will be transported under tightly controlled conditions. All samples have unique numbers and have been pseudonymised. Once you have performed your analyses of the biological samples, Lifelines links the analysis results to the pseudonyms of the data you requested.